About Us
We’re Haley and Eli — first-time parents, accidental podcasters, and fierce advocates for our son, Leo.
In 2023, our lives changed forever when Leo was diagnosed with MEF2C Haploinsufficiency Syndrome (MCHS), a rare neurodevelopmental disorder. At the time, we were overwhelmed, scared, and swimming in more questions than answers. We craved connection, guidance, and hope — but the silence around this diagnosis was deafening.
So we created MEF2Cast — a podcast built on community, storytelling, and shared experience. We may not be medical experts, but we are parents navigating the unknown, learning as we go, and determined to amplify the voices of others walking a similar path. We are dedicated to informing, supporting and building community surrounding MCHS.
Each episode features real conversations with families, researchers, therapists, and advocates — because behind every diagnosis is a story that deserves to be heard. We believe in the power of connection, the importance of advocacy, and the beauty of celebrating every win, no matter how small.
This podcast is for you — whether you're newly diagnosed, a seasoned advocate, a curious listener, or someone just trying to understand. You’re not alone. And we’re so glad you’re here.
Welcome to our MEF2Cast family. 💙