Episode 18: Hope in Every Step with Nicki and Kyle

🎙️ In today’s episode, we’re joined by the Bouvier family as they share their heartfelt journey with their daughter, Taylor, who has Mef2C Haploinsufficiency Syndrome (MCHS).

Together, we discuss the emotional and practical realities of parenting a child with special needs—from the long road to diagnosis to the power of building a strong support network. The Bouviers open up about the therapies and interventions that have helped Taylor, the communication breakthroughs they’ve experienced, and the importance of advocacy in navigating this path.

Some highlights include:

• The winding journey to Taylor’s diagnosis

• Building a support system that truly understands

• How therapies have shaped Taylor’s development

• Evolving communication and celebrating every win

• Advocacy in medical and educational settings

• The emotional toll—and the joy—of special needs parenting

• Holding onto hope for a brighter future for kids with MCHS

…and so much more.

If this episode resonated with you, please like, share, and subscribe to hear more stories from the MCHS community.

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