Episode 27: Parenting Through Diagnosis with Mariah and Adam Zwick

In this episode, we sit down with Mariah and Adam Zwick to discuss their journey raising Noah — a bright and determined little boy with a rare genetic condition. Mariah and Adam open up about the earliest signs that something was different, the emotional challenges of pursuing a diagnosis, and the complex world of therapies, specialists, and support systems that followed.

The conversation explores the realities of parenting a child with special needs, with a particular focus on Cortical Visual Impairment (CVI) and the importance of early diagnosis and intervention. Together, we discuss how intuition guided their search for answers, the emotional toll and resilience that come with parenting through uncertainty, and the lessons they’ve learned about advocacy, patience, and hope.

Through their honesty and perspective, the Zwicks shed light on the importance of community, access to care, and celebrating every small victory. Their story is one of courage, persistence, and love — a reflection of the heart that drives so many families in the MCHS community.

Subjects covered include:

• Trusting parental intuition and recognizing early signs

• The emotional weight and relief of receiving a diagnosis

• Understanding CVI and the importance of early intervention

• Navigating therapies and finding the right fit for your child

• How access to services often depends on income, not need

• The emotional toll of parenting a child with special needs

• Building community and finding support along the way

• Learning to celebrate small wins and continued progress

• Hope and resilience within the MCHS community

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