Episode 39: Childhood Apraxia of Speech and IEP Advocacy | Jordan LeVan
In this episode of MEF2Cast, we sit down with Jordan LeVan to explore his powerful journey living with childhood apraxia of speech (CAS). Jordan shares what it was like growing up with a motor planning disorder that made verbal communication incredibly challenging, and how early struggles in diagnosis and therapy shaped his path forward.
Through an honest and insightful conversation, Jordan breaks down the realities of speech therapy for children with CAS, emphasizing the importance of understanding motor planning and individualized approaches to communication. He also highlights how communication disorders can impact not just speech, but learning, confidence, and social-emotional development.
A passionate advocate, Jordan dives into the critical role families play in navigating IEPs and special education systems. He shares practical strategies for parents, including understanding their legal rights, preparing for meetings, and ensuring their child receives appropriate services—whether through speech therapy or AAC tools.
Jordan also discusses his advocacy work through the Apraxia Foundation and Fighting for My Voice, organizations dedicated to raising awareness and improving support for individuals with communication disorders.
This episode is both empowering and informative for parents, educators, and anyone seeking to better understand the lived experience of CAS—and how advocacy can truly change lives.
- Jordan’s personal experience with childhood apraxia of speech
- Understanding CAS as a motor planning disorder
- Challenges in speech therapy and effective approaches
- The impact of communication disorders on education and emotional health
- Navigating IEPs and special education advocacy
- Legal rights under IDEA and FERPA
- The role of AAC and alternative communication methods
- Advocacy through the Apraxia Foundation and Fighting for My Voice
- https://apraxiafoundation.org/
- https://fightingformyvoice.com/
- https://www.facebook.com/fightingformyvoice/
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