Episode 8: Pathways to Hope with James Kelly & Lorena García Fernández

In today’s episode, we are joined by James Kelly and Lorena In today’s episode, we are joined by James Kelly and Lorena García Fernández, founders of the MEF2C Foundation and parents to Elijah. James is also a board member for Rare Bird.

Lenora and James join us to discuss their journey to diagnosis with Elijah and how that inspired them to start the MEF2C Foundation. They tell us about the ins-and-outs of Elijah’s everyday life and tips and tricks they've picked up along the way. We also discuss their experience with using the ketogenic diet to control Elijah’s seizures. Next, we discuss the lessons learned parenting someone with MCHS and their approach to running their foundations. Finally, we discuss their vision for the future, both for Elijah and MCHS as a whole.

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Thank you to all of our listeners for their time!

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Find Rare Bird: rare-bird.org