Resources for the MCHS Community
Navigating a rare diagnosis like MEF2C Haploinsufficiency Syndrome can feel overwhelming — but you’re not alone.
This space is dedicated to the foundations, tools, research, and support networks that have made a difference for families like ours. Whether you're newly diagnosed or years into your journey, we’re gathering everything in one place to help you feel more informed, connected, and empowered.
From advocacy groups to clinical research, therapy ideas to community grants — we’ll be adding trusted, helpful resources here regularly.
This is for our village. And if you know a resource we should include, let us know!